This strategy can be used for: Dissemination
The team shares research findings and implications in a video format instead of a written paper. Preparing video presentations of project findings gives team members with disabilities who may not be interested in writing an academic manuscript an opportunity to engage in the dissemination process. Co-researchers contribute by picking the main ideas or findings to share, helping to write the video script, and appearing in the videos as interviewers, respondents, or actors. Different team members can take on different roles such as actor, director, camera operator, and editor to create the video.
Video summaries may include (with appropriate consent) visual data, including photos and excerpts from interviews. Video summaries of project findings and implications may be more accessible for stakeholders including people with disabilities, families, service providers/professionals, and the general public.
Security note: Be sure your research team has permission from the research ethics committee /institutional review board to disseminate images, videos, and audio recordings of research participants.
Modification for remote collaboration
- Use other remote collaboration methods (e.g., those related to decision making, data analysis, etc.) to identify priority content for the videos.
- Team members can record themselves using their own camera, and individual recordings can be edited into one video.
- Team members can be recorded as a group during a video conference meeting.
Access Accommodations and Supports
- Provide individualized support and training to make recordings, save recordings, listening to recordings, how to switch from camera to video, how to access videos and photos.
- For individuals with gross or fine motor challenges, physical assistance or adaptive equipment may be needed to press buttons, hold equipment, and charge equipment.
Resources
- This link has directions for recording and uploading videos to Microsoft Flipgrid. This is a tool your team can use to share short videos with other people.
- You can create a video for dissemination in Zoom by having team members take turns talking while someone advances slides, or displays other visuals. Here are directions for recording in a Zoom meeting. You can also record in other conferencing platforms, such as GoTo Meeting.
- See examples of video dissemination here:
Tools to explore
- Apple iMovie is a tool to create movies
- VoiceThread is a video meeting tool that can also be used to create videos and interact in real-time
References
Examples of studies using this strategy
Cumming, T. M., Strnadová, I., Knox, M., & Parmenter, T. (2014). Mobile technology in inclusive research: Tools of empowerment. Disability & Society, 29(7), 999–1012. https://doi.org/10.1080/09687599.2014.886556
Davidson, A. (2015). A collaborative action research about making self-advocacy videos with people with intellectual disabilities. Social Inclusion, 3(6), 16–28. https://doi.org/10.17645/si.v3i6.412
Deepak, S., Kumar, J., Ramasamy, P., & Griffo, G. (2014). An emancipatory research on CBR and the barriers faced by persons with disabilities. Disability and Rehabilitation, 36(18), 1502–1507. https://doi.org/10.3109/09638288.2013.800914
Dowling, S., Williams, V., Webb, J., Gall, M., & Worrall, D. (2019). Managing relational autonomy in interactions: People with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities : JARID, 32(5), 1058–1066. https://doi.org/10.1111/jar.12595
Frankena, T. K., Naaldenberg, J., Tobi, H., van der Cruijsen, A., Jansen, H., van Schrojenstein Lantman-de Valk, H., Leusink, G., & Cardol, M. (2018). A membership categorization analysis of roles, activities and relationships in inclusive research conducted by co‐researchers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(3), 719–729. https://doi.org/10.1111/jar.12567
Haigh, A., Lee, D., Shaw, C., Hawthorne, M., Chamberlain, S., Newman, D. W., Clarke, Z., & Beail, N. (2013). What things make people with a learning disability happy and satisfied with their lives: An inclusive research project. Journal of Applied Research in Intellectual Disabilities, 26(1), 26–33. https://doi.org/10.1111/jar.12012
Ryan, S. M., Yuan, S. J., Karambelas, A. M., Lampugnale, L. E., Parrott, B. J., Sagar, C. E., & Terry, T. V. (2015). "We are researchers": Students with and without intellectual disabilities research the university experience in a participatory action research course. Canadian Journal of Action Research, 16(2), 70–82. https://doi.org/10.1080/23297018.2019.1627571
Schwartz, A. E., & Durkin, B. (2020). "Team is everything": Reflections on trust, logistics, and methodological choices in collaborative interviewing. British Journal of Learning Disabilities. https://doi.org/10.1111/bld.12305
Sitter, K. C. (2012). Participatory Video: Toward a method, advocacy and voice (MAV) framework. Intercultural Education, 23(6), 541–554. https://doi.org/10.1080/14675986.2012.746842
Sitter, K. C., Burke, A. C., Ladhani, S., & Mallay, N. (2019). Supporting positive sexual health for persons with developmental disabilities: Stories about the right to love. British Journal of Learning Disabilities, 47, 255– 263. https://doi.org/10.1111/bld.12287
Examples of studies using this accommodation
Callus, A.-M., Bonello, I., Mifsud, C., & Fenech, R. (2019). Overprotection in the lives of people with intellectual disability in Malta: Knowing what is control and what is enabling support. Disability & Society, 34(3), 345–367. https://doi.org/10.1080/09687599.2018.1547186
McDonald, K. E., & Stack, E. (2016). You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities. Disability and Health Journal, 9(2), 201–207. https://doi.org/10.1016/j.dhjo.2015.12.006
Morgan, M. F., Moni, K. B., & Cuskelly, M. (2015). The development of research skills in young adults with intellectual disability in participatory research. International Journal of Disability, Development, and Education, 62(4), 438–457. https://doi.org/10.1080/1034912X.2015.1028905
Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Ashkenazy, E., Boisclair, C., Robertson, S., & Baggs, A. (2011). Collaboration strategies in nontraditional community-based participatory research partnerships: Lessons from an academic−community partnership with autistic self-advocates. Progress in Community Health Partnerships : Research, Education, and Action, 5(2), 143–150. https://doi.org/10.1353/cpr.2011.0022
Puylato, C., Pallisera, M., Fullana, J., & Vila, M. (2016). Doing research together: A study on the views of advisors with intellectual disabilities and non‐disabled researchers collaborating in research. Journal of Applied Research in Intellectual Disabilities, 29(2), 146–159. https://doi.org/10.1111/jar.12165
Sitter, K. C. (2012). Participatory video: toward a method, advocacy and voice (MAV) Framework. Intercultural Education, 23(6), 541–554. https://doi.org/10.1080/14675986.2012.746842
St. John, B., Mihaila, I., Dorrance, K., DaWalt, L. S., & Ausderau, K. K. (2018). Reflections From co-researchers with intellectual disability: Benefits to inclusion in a research study team. Intellectual and Developmental Disabilities, 56(4), 251–262. https://doi.org/10.1352/1934-9556-56.5.251
Walmsley, J. (2004). Inclusive learning disability research: The (nondisabled) researcher’s role. British Journal of Learning Disabilities, 32, 65–71. https://doi.org/10.1111/j.1468-3156.2004.00281.x
Williams, V., Simons, K., Gramlich, S., McBride, G., Snelham, N., & Myers, B. (2003). Paying the piper and calling the tune? The relationship between parents and direct payments for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 16(3), 219–228. https://doi.org/10.1046/j.1468-3148.2003.00164.x